About HS Online

HS Online is a useful resource developed in collaboration with leading doctors in the field and people living with hidradenitis suppurativa (HS). HS Online is designed to help educate, uplift and empower the HS community with information and support.

Up to 1% of the population is living with HS, yet there has been limited information available about this recurrent, and often painful, inflammatory disease.1-3

Here, you’ll be able to learn about the basics of HS, hear perspectives from HS experts and patients, fill out our Check Your Symptoms interactive discussion guide for information and tips to help navigate a conversation with a health care professional and much more.

 

About the Steering Committee

Tara_Burton

Tara 

United Kingdom

Tara has been living with hidradenitis suppurativa since the age of 14, but was not diagnosed until the age of 24. In 2006, Tara lost her job as an Accounts Assistant due to ill health. This unfortunate event, and the lack of existing knowledge and support available for the HS community, inspired her to help develop the British Association for Hidradenitis Suppurativa (BAHS) in 2007, a key patient advocacy group in the United Kingdom. Two years later, this became the first registered United Kingdom charity dedicated to HS. Now known as the Hidradenitis Suppurativa Trust (HST), the charity is run by Tara and 7 other trustees who volunteer their time to the organisation.

Gregor_Jemec

Prof. Dr. Gregor Jemec

Denmark

Over the last three decades, Dr. Jemec has been at the forefront of HS research, with dozens of publications contributing to the definition and management of the disease. Currently serving as the Congress President of the European Society of Dermatology and Psychiatry, Dr. Jemec is a professor and founding chairman of the Department of Dermatology at the University of Copenhagen Roskilde Hospital.

Neel_de_Place

Neel 

Denmark

Neel has been living with HS since 1993, but only received a diagnosis in 2012 when she was referred to the dermatology ward at Roskilde Hospital. She is chairman of the Danish HS patient association, for which she has been instrumental in establishing relationships with, and providing support to, other patients.

Christos_Zouboulis

Prof. Dr. Christos Zouboulis

Germany

A chief architect of the Hidradenitis Suppurativa Foundation in the US (and its former president) and the active president of the European HS Foundation, Dr. Zouboulis has been studying HS for more than 25 years. He was the chair of the steering committee for the German Guidelines of HS Treatment published in 2012 and, together with Dr. Jemec, coordinates the preparation of the European Guidelines of HS treatment. A professor with more than 500 publications, Dr. Zouboulis is currently chair of the Departments of Dermatology, Venereology, Allergology and Immunology at Dessau Medical Center.

 

REFERENCES:

  1. Revuz J. Hidradenitis suppurativa. J Eur Acad Dermatol Venereol 2009;23:985–998.
  2. Jemec GB. Clinical practice. Hidradenitis suppurativa. N Engl J Med 2012;366:158–164.
  3. Zouboulis CC, Tsatsou F. Disorders of the apocrine sweat glands. In: Goldsmith LA, Katz SI, Gilchrest BA, Paller AS, Leffell DJ, Wolff K. Fitzpatrick’s Dermatology in General Medicine. 8th ed. New York, Chicago: McGraw Hill; 2012. p947–959.